The 1722 Network, named after the chromosomes affected by NF (Chromosome 17 for NF1 and Chromosome 22 for NF2), serves as a comprehensive resource hub for individuals and families navigating the complexities of Neurofibromatosis. Understanding that knowledge is power in the fight against NF, this network connects patients, families, and healthcare providers with valuable information and resources about clinical trials, research, and specialized treatment centers across the United States. In collaboration with the National NF Network, and with aspirations to work alongside the University of Florida Center for Excellence in NF Research, we're committed to sharing vital resources and information with the NF community.
Patient Education Manager for Neurofibromatosis Type 1 with Plexiform Neurofibromas (NF1 PN) Call 1.786.670.1858 for more information
Visit ResourceComprehensive resource explaining the basics of Neurofibromatosis, symptoms, and management strategies for patients and families.
Visit ResourceLeading research center dedicated to advancing NF treatment through clinical care, research, and education programs.
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Visit ResourceCollaborative research initiative focused on developing new treatments and understanding the genetic basis of NF1.
Visit ResourceInformation about groundbreaking clinical trials specifically targeting NF2 tumors at the University of Miami.
Visit ResourceDatabase of active clinical trials for neurofibromatosis, allowing patients to find and potentially participate in cutting-edge research.
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